Sunday, December 6, 2009

Thanksgiving to remember

So the whole family is at my sisters for Thanksgiving. She was not feeling well and I rested all week before leaving so I would have energy to help her out. Why cause she had her 4, my 4, her in laws and my dad there...she would need all the help she could get. So we arrive Wednesday night and eat a great dinner, an old family recipe for spaghetti. After dinner Dad was going to take Seth to pick out his Birthday present. Cindy and I decide to go with them and pick up a few items for Thursday....Then the fun begun! I twist my ankle and fall walking out the door. I have had balance issue since I was diagnosed with hPT. The pain was unlike anything before...and I have broken both my feet in the last four years. So they are trying to get me into the car to go to the ER. The next thing I know I am coming to...I have passed out and vomited everywhere. This is a big problem because now my calcium will go low and I am away from my regular doctors (this always scares me). As I come around they have called an ambulance, real embarrassing! Needless to say I come home from the ER with a splinted foot, pain medication, and no crutches!!! Really, the hospital in this town doesn't stock crutches! Thankfully the store down the road does. SO my poor sister that is sick has to do Thanksgiving with out my help! I HATE this disease!!!!

Tuesday, February 10, 2009

NIH update

I talked to the nurse at the NIH today. The reviewers of the drug study are coming back the last week of February. This SHOULD be the last hurdle before the study starts back and I can start getting the PTH drug. So the new guess on a dat in April not March....yeah right...I will believe it when I am on a plane to DC.

Happy Birthday!!!

Becca, I love you and Happy 19th Birthday!!!!Hope your day is as good as mine was 19 years ago:). Seth has strep so goto the doctor if your throat starts to hurt since you ate lunch with him earlier. See you Saturday.

ADED 7330

I am in a technology class and we are to make a blog or share one we have...so if you are here because you are one of my fabulous classmates...welcome. I can't wait to see your blogs and learn more about each of you. If you aren't in the class and just stumbled into here...what did you google to get HERE...

Saturday, February 7, 2009

The old New diet

Awhile back I posted about the NEW diet the doctors had put me on for my kidneys...here is an update. In the last six months I have followed the low phosphate diet- which is not always easy- as much as possible. My endocrinologist called the my latest lab results and he said my kidney function was back in the normal range!!!!! So I will keep eating junk, limiting my meat intake, and avoiding COKE cola...yummy... :)

Friday, February 6, 2009

Death

I was at a funeral yesterday and I had some odd thoughts that won't go away. Here they are...if four years ago I was an active participant in my life. And today I am an active observer in my life because I am tired, fatigued, nauseous, and in pain most hours of the day. What will I be like in 4 more years...8 more years...Will I be like Mr. McCall...most likely not. He was 99 years old and still driving. A couple of weeks ago he was on his roof cleaning it. I cannot even walk one block without pain. What will my life be like in four years when I am only 41 years old..................

Thursday, January 22, 2009

Up AGAIN

Ok so I have a meeting at 0730...it is 0115.wish I could sleep, everyone else in the house is but not me. I am sure to be a bundle of joy in 6 hours. I should hear from the NIH by Friday on when the new date for the PTH injections can start. I am so ready for this new drug to feel better and maybe sleep again.
Enough about that. So I did not get to start running again so the half marothan with my sister this spring is out. So new plan is to g and walk the 5K and cheer her on...maybe she will wear the ' hpt sucks' shirt. I will strive to be able to run it next year if I start the medication this summer it should be possible to run next spring.
I am thankful for my job(s) atleast they make me feel productive.