NIH update

I talked to the nurse at the NIH today. The reviewers of the drug study are coming back the last week of February. This SHOULD be the last hurdle before the study starts back and I can start getting the PTH drug. So the new guess on a dat in April not March....yeah right...I will believe it when I am on a plane to DC.

Happy Birthday!!!

Becca, I love you and Happy 19th Birthday!!!!Hope your day is as good as mine was 19 years ago:). Seth has strep so goto the doctor if your throat starts to hurt since you ate lunch with him earlier. See you Saturday.

ADED 7330

I am in a technology class and we are to make a blog or share one we have...so if you are here because you are one of my fabulous classmates...welcome. I can't wait to see your blogs and learn more about each of you. If you aren't in the class and just stumbled into here...what did you google to get HERE...

The old New diet

Awhile back I posted about the NEW diet the doctors had put me on for my kidneys...here is an update. In the last six months I have followed the low phosphate diet- which is not always easy- as much as possible. My endocrinologist called the my latest lab results and he said my kidney function was back in the normal range!!!!! So I will keep eating junk, limiting my meat intake, and avoiding COKE cola...yummy... :)

Death

I was at a funeral yesterday and I had some odd thoughts that won't go away. Here they are...if four years ago I was an active participant in my life. And today I am an active observer in my life because I am tired, fatigued, nauseous, and in pain most hours of the day. What will I be like in 4 more years...8 more years...Will I be like Mr. McCall...most likely not. He was 99 years old and still driving. A couple of weeks ago he was on his roof cleaning it. I cannot even walk one block without pain. What will my life be like in four years when I am only 41 years old..................